Archive for July 2010

Wednesday, July 28, 2010

PT is going great. Deb is awesome. My walking has definitely suffered from the flu and bronchitis, but I know the stem cells are working, because there are other areas that have been totally repaired and I knew the repairs were going to be gradual. Deb thinks that after being so darn sick, I just need to be patient. Abra cadabra…PATIENCE!

Add a comment July 28, 2010

Tuesday, July 27, 2010

Our bed is very high and I have a little step stool that I use to get up there. Now Marie Antoinette had a little step stool too…I saw it at the Chateau at Fountainbleau. So me and Marie Antoinette….So my right leg is the weak leg, but yesterday I got on that step stool and then lifted that right leg right on up there….

I had my first Physical Therapy session today…I think I found the one!  Her name is Deb and I think she is awesome.  These stem cells are going to be happy!  I will keep you posted.

2 comments July 27, 2010

Saturday, July 24, 2010

The Stem Cells have to be worked.  Physical Therapy is very important for that reason.  Today, I spent some time in the swimming pool and did some stuff around the house.  I am still on antibiotics and have not completely recovered from the bronchitis/flu.  Hopefully, I will be completely better by Tuesday, when I start my PT!

Add a comment July 25, 2010

Friday, July 23, 2010

I have my prescription for physical therapy and I am scheduled for my first visit on Tuesday.  I have to keep the Stem Cells working and the best way to do that is to work the body.  I am busy at home as well, gardening and riding the recumbant bike.  I don’t know if the computer counts, but the keyboard sure gets a lot of exercise!!  So the changes I was seeing in Panama have only partially emerged for the moment.  I am still mid-treatment for the bronichitis and I know I need to be patient.  I am still feeling much more energetic and the weakness and fatigue are nowhere to be seen.  I will keep you posted!

Add a comment July 23, 2010

Thursday, July 22, 2010

I am getting ready for a doctor’s appointment for the express purpose of getting a referral for physical therapy.  Yesterday, I met with a wonderful trainer who just did not have the pt background I was looking for.  I have an appointment on Tuesday with a genuine physical therapy clinic that sounds like what I was doing in Panama.  I need the weight training as well as the stretching and the work on balance and core strength.  Those stem cells need to be worked!!

Add a comment July 22, 2010

Wednesday, July 21, 2010

Here is the latest:  I am on the hunt for the right physical therapist.  Ivan, my therapist in Panama, was top notch…absolutely the best.  I had an appointment this morning with a trainer at Life Time Fitness.  He has had experience working with people with “stuff”, and he was compassionate and experienced.  I just don’t think he is exactly what I am looking for.  I have contacted the National MS Society, but their list of PTs was more in the line of rehab hospitals, which frankly, does not incorporate the weight resistance and the stretching by the therapist.  I found what looks to be very promising at the Medical Center of Arlington, sports medicine rehab.  I spoke at length to a staff member, and it sounds perfect.  My first appointment is in a week, unfortunately, because I must have a referral from a local doctor, and I have that appointment scheduled.

On another note, I find that I am not using my cane anymore!  Things are marching along (so to speak)!!

Add a comment July 21, 2010

Monday, July 19, 2010

Today I had an enormous victory!  I went grocery shopping at Super Target and I walked in the store for 1.5 hours.  Usually, after about 30 minutes my legs begin to shake and get very weak.  At this point I have to sit down.  This issue has been going on for 22 years.  I was a little tired after 1.5 hours, but my legs felt fine, so fine in fact that I came home and made lunch.  When I got in the car to leave the store, I had to take a moment to reflect on this enormous change.  So, so grateful.

4 comments July 19, 2010

Saturday, July 17, 2010

The flu evolved into bronchitis…verdict…I am going to LIVE!  Antibiotics are on the menu.  I have been completely natural, taking Homeopathy and natural meds for 13 years.  However, this adventure into stem cell transplantation did involve alopathic meds and so the antibiotics were a no brainer.  I am 1 day into the meds and am starting to feel better.  I will continue to post the progress on the stem cells as I go along.  This is a very exciting time!  Thanks for following along!

Add a comment July 18, 2010

Friday, July 16, 2010

I have been a little under the weather and I have not posted for a few days. This Panama Flu is a tough one.  I am going to post a very special picture of the last day, just after the last injection.  You will see from left to right:  Dr Jorge Paz Rodriguez, Ivonne de Fitzgerald, Me, Dr. Mariola Herrero and Dr. Hernan Hernandez.

Add a comment July 17, 2010

Tuesday, July 13, 2010

I am beginning to kick this flu…yay!!!  I have an amazing developement to report.  Since I was in my mid twenties, I have had a lot of trouble with a certain (read: embarassing to discuss) part of my body.  I am just going to talk about it…this is too important.  I had trouble with my bladder.  As the years progressed, all control was lost.  When I arrived in Panama City, things were at their worst.  NEWS FLASH:  The problem has resolved itself.  The Stem Cells have repaired the nerves so early in this process.  I have been so sick with the flu, but it is clear that repair was still happening.  I am totally flabergasted…..

2 comments July 13, 2010